My Photo

Melody

  • A mom by birth and adoption shares - through photography, writing and humor - parenting boys who live with autism, ADHD, cerebral palsy, fetal alcohol spectrum disorder and more. Reminding everyone that children with special needs are kids.

Why I Blog...

  • My special purpose sons take me to places daily in mind and heart that I would have never known existed without them. In sharing photos and a few words from our daily life, I encourage you to look at your life with humor, hope and the reality that you do what you can do when you can do it.

Photos

  • www.flickr.com

Blogroll

AddThis Social Bookmark Button

Related Posts Widget for Blogs by LinkWithin

« Liquid That Falls In Drops ~ Drip | Main | A Contest That Makes Me Go Mmmmmmoo »

July 20, 2007

Love And Determination

Love for Parker

Did you tuck your child into bed last night fearing for his or her life?  One mother did...her son's cardiologist called...

An echocardiogram is where they measure Parker'€™s Pulmonary Hypertension levels. The last two echocardiograms showed that Parker'€™s numbers were steadily rising. Rising isn'€™t the way we want them to go. If as in Parker's case, PH numbers rise high enough, PH is quite often deadly. There have been two children on the PH list that I am on to lose their fight to this disease in the last few months.

One is hoping for a heart lung transplant before time runs out.   

My shoulders are already tense. I know I won'€™t sleep well tonight. I can'€™t seem to get enough of Parker. I hold him to me as if just my determination alone could heal his heart and lungs.

If only a mother's love and determination were enough.  Costly medical interventions are necessary, and sadly, insurance is not the answer.  Medicaid is not available to the family.  Every entity they approach for assistance issues the same reply...sorry, you don't qualify.

A mother should not tuck her child into bed each night worrying where the funds will come for the next medical procedure which will sustain his young life...for a piece of plastic tubing to ensure his next breath.  Nor should she spend her days begging an insurance company for coverage and fighting red tape.

A mother should be free to tuck her son into bed each night with a hug, a kiss and relaxed shoulders.

Please join us in "Love for Parker".  You will be blessed.

AddThis Social Bookmark Button

TrackBack

TrackBack URL for this entry:
http://www.typepad.com/services/trackback/6a00d8341bfadf53ef00e008dbfef48834

Listed below are links to weblogs that reference Love And Determination:

Comments

Enter your email address:

Delivered by FeedBurner

Favorite Me

  • Add to Technorati Favorites

5 Minutes for Special Needs

  • Special Needs Blog

Photography

  • Slurping Life
  • OWP badge
  • Photobucket
  • bsm

Look...

  • The Small Is Beautiful Manifesto
  • kirtsy!

Copyright

  • The contents of this website are protected by applicable copyright laws. All rights are reserved by the author.
Blog powered by TypePad