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Melody

  • A mom by birth and adoption shares - through photography, writing and humor - parenting boys who live with autism, ADHD, cerebral palsy, fetal alcohol spectrum disorder and more. Reminding everyone that children with special needs are kids.

Why I Blog...

  • My special purpose sons take me to places daily in mind and heart that I would have never known existed without them. In sharing photos and a few words from our daily life, I encourage you to look at your life with humor, hope and the reality that you do what you can do when you can do it.

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Cerebral Palsy

June 11, 2009

Mom, I Dance Better Without You

Every major life event should have a celebratory dance afterward.

 Surely you have 47 seconds to waste spend watching a video of our dance.

Turn your volume on.

Having "Jump" embedded upon your gray matter is a bonus.

You're welcome.

[Wil in blue shirt, khaki shorts. Melody in black shirt, khaki shorts.]

At the conclusion of our jump-dance, Wil looked at me and in a most serious voice said...

"Mom, I dance better without you."

Then he did this...

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...and I did not join him.

We thank you for your comments of support, pride and "way to go, Wil" as we've shared a small portion of our first Special Olympics experience. We'll stop now.

Comment

June 08, 2009

He Swam in the Really Big Pool Again and Won Olympic Medals

If you haven't read, day one was relived here.

The boy got up early the next day and swam in the really big pool, again. This time it was the competition.

His mother and grandmother can only take so much of him sitting alone by the really big pool without dad-coach. The boy...he can take it.

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A brighten-your-day photo of the stud in his Speedo. Yes, one day there will be payback for that remark.

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Splash! Wil dives in for his 25m swim.

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Wil stood on the metal podium after the 25m, jubilant in receiving a fourth place ribbon having swam his best 25m time ever.

He didn't know there had been a mix-up and that he was actually the bronze medalist. I knew, and my heart sank a bit knowing he would receive his medal off podium.

Still, I was proud that he upheld the Special Olympics motto:

“Let me win. But if I can not win let me be brave in the attempt.”

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Later Wil was awarded the bronze medal for his division of the 25m freestyle.

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Maybe Wil will forgive me for being so excited and distracted that weekend that every image exposure and focus was off. An overly excited Special Olympic athlete's mom should never be the designated photographer.

One and one-half hours later, Wil readied for his 50m freestyle event.

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He swam so hard. His best time ever in a 50m swim.

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Wil won a second bronze medal. This time it was excitedly received on the podium.

I loved the high five moment.

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The responsibilities of a champion are many...including television interviews.

I have not yet found the interview posted on the television news site or Special Olympics Georgia.

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The victory jump and yell after holding his composure for what must have seemed like fo-evah during the medal presentation and interview.

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Finally, Wil stood still for the double bronze medalist shot. Loving the bling.

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Have I mentioned how proud I am of my son?

Or that I love him more than should be humanly possible?

I am

and

I do.

Special Olympics has touched our family in ways which words cannot convey.

Experience it for yourself.

Change attitudes. Change the world.

Thanks for reading.

Comment

June 05, 2009

The Really Big Pool and the Little Boy Who Swam In It

When intense emotions, amazing inspiration and immeasurable blessings come my way, I tend to shutdown for a few. That's where I've been since attending last weekend's Special Olympics Georgia summer games.

You have no idea.

After awaking Friday at 4:30AM and hitting the road (we dragged Grandma along), our family arrived at Emory University in plenty of time for Wil's preliminary swims in the 25m and 50m freestyle events.

As we walked into the aquatics center I gasped.

"That's a really big pool they expect my baby to jump into and swim. It's an Olympic-size pool."

"Duh" chimed the brothers, Lee and Mac.

Wil did not flinch.

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Dad, aka Coach, prepped Wil and his teammate as they began their warm-up swim.

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Wil dove into that big ole pool for warm-up laps like he'd done it every day of his life. Me, I was hanging onto the upper deck rail snapping photos between gasps of "that's my baby in that really big pool." I swear, Michael Phelps could not have been more cool and focused than Wil.

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Then came the call for swimmers to the bullpen and coaches to leave the deck. Dad-coach had this "they've taken my son and I don't know where he is" look. How I love this man who loves our sons beyond measure.

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Grandma was like "What? They're making my baby grandchild swim in that really big pool without his Dad nearby?!". I love my mom.

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I even sensed a bit of concern and tension from the big brothers. The biggest brother was stuck at work and staying in touch by cell phone.

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My heart was aflutter. My baby boy looked so small and alone sitting on the edge of the really big pool ready to dive into his lane.

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But he was never alone. Look at the volunteers lining the pool. They were on both sides. I love me some autotrader.com volunteers.

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Then my skinny little boy dove into the really big pool and swam. He remembered his dad-coach's words "Hold back. It's only preliminaries."

Oh be still my heart. Did I mention that's my little baby boy in the really big pool? The one who was never expected to walk, talk or have measurable intelligence?

Well, it's him.

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He swam.

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See that lady there on the left...the one cheering for my son with all her heart? I love her. I'd put her in my will if I knew her name. Anyone recognize her?

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After the preliminary swims came relaxed moments with dear, sweet, quiet Grandma...who by the way was anything but dear, sweet and quiet during Wil's swim. I just didn't get any shots of her because, you know, I was a little busy focusing on my baby in that really big pool.

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When preliminaries were over, all Wil had to say was, "That was easy. Can we go get pizza now?"

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Wil and our family love you for your support.

Reliving that was purely exhausting for me. I'll be back later to post the photos and events of opening ceremonies, the actual competition swims, Wil's results, his television interview and the celebration dance.

Did you notice that not one photo is in focus? Remember, most of the time mom-photographer hanging onto a railing with one hand, snapping photos with the other and cheering like a mad woman. The other shots...I have no excuse beyond pure exhaustion.

Dad also shot video of Wil and me at the celebration dance as we danced (and I use that term loosely) to the Pointer Sisters song, Jump.

Beyond Wil's story there is so much I want to say about Special Olympics...the volunteers...the athletes. Unless you've been there, you have no idea.

It was my first time. 

I am forever changed.

May 28, 2009

Love Thursday ~ Special

I look at this child of mine and see so much more than you.

I see his pain. His intense struggles. His once physically abused and broken body.

His kind, forgiving spirit. His acceptance of difference.

His heart that loves so, so deeply. 

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Friday morning at an unbelievably early hour our family, including Grandma, will head to our State's summer Special Olympics. 

And...

Wil will be swimming the 25m and 50m freestyle events.

It is his first time competing in anything other than daily scuffles with his brothers.

He's a bit nervous.

And way psyched.

This beautiful soul...our miracle child...has overcome so much. He has struggled, persisted and accomplished things the experts said would not be possible.

We are so proud of him.

We are so blessed by him.

We love him beyond measure.

I assure you that all love and GO WIL! you send this way will be enthusiastically received and deeply appreciated by a special eleven year old boy.

~~~

Got a little love to share this Love Thursday?

Comment

March 24, 2009

Inspiration is Found in Little Moments

Pausing for magical everyday moments reminds us that life is really good...even when seconds before we were not feeling the goodness.

Have an inspired Tuesday filled little moments that make you happy.

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