A mom by birth and adoption shares - through photography, writing and humor - parenting boys who live with autism, ADHD, bipolar disorder, cerebral palsy, fetal alcohol spectrum disorder and more. Reminding everyone that children with special needs are kids.
Why I Blog...
My special purpose sons take me to places daily in mind and heart that I would have never known existed without them. In sharing photos and a few words from our daily life, I encourage you to look at your life with humor, hope and the reality that you do what you can do when you can do it.
Watching as this diverse group of women stood by waiting to go onstage and perform a belly dance, my thoughts were...
How brave and self-assured these women are...mothers, sisters, daughters, women...preparing to go onstage before hundreds of people for a belly dancing performance.
I felt it...what they have...and I want it...
...that umph go for it spirit...that this is for me do not care what anyone else thinks spirit.
Yeah, that's it.
It is within me...within you.
Let's go for our dreams. Lose the inhibitions. Drop the excuses.
We have what it takes to achieve our dreams...be our best
Days no longer meander at the oh it's never going to be [insert whatever day or event you couldn't wait for as a child] pace. Instead the sun sets and I can hardly believe another day has escaped. Left me longing for a do-over...a chance to create more sweet memories...to hug just a little longer.
I want one more glance into the yesterday eyes of my children because those eyes have today changed forever.
And I cannot shake this. The happy-go-lucky free spirit that was me has hidden away from myself. I miss her terribly. I miss her with a passion that aches.
I see the retro soul of my son, Mac. The guy who loves peace signs, The Beatles, VW vans and everything '60s. The guy who lives with umph and passion. The guy who has dreams and spirit. The guy who has fun being himself with no forethought let alone concern as to what anyone else thinks of it all.
I hear his infectious laughter.
Once, it was me.
I want her back.
I saw a glimpse of her today. The fun shoes, clothes and frolicking that really happened daily in my life. Really, I did those things. I wore those shoes. I was creative and spirited.
Tonight I cried for the lost me.
Somewhere between the boys' therapy sessions, the homeschool, the unimaginable stresses, the dirty laundry, the being a wife, the cooking-cleaning, the occasional night's sleep, the Special Olympics games this weekend and a zillion other responsibilities, I know she lives.
And 1.5 quarts of Breyer's Waffle Cone Overload won't bring her back.
We should not feel embarrassed by our difficulties, only by our failure to grow anything beautiful from them.~~Alain de Botton
So keeping that in mind I'm beginning again...walking the bumpy but beautiful road of life with its twists and turns. Still, it is not possible to forget the stones that trip one along the walk nor the unknowns around each bend waiting to steal life breath or breathe new vitality into the depth of being...the choice of which is ours.
Still, remembering the fantasia of light beckoning across the threshold of life to death...and the resplendent voice of love which gently whispered "I love you, mom" and halted my steps.
I'm once again planting, cultivating, nurturing...growing something beautiful along the bumpy road, and it is an amazing joy to have you join me.
She gave birth to a baby. She died. Her baby died. Life continued without them.
She and I never walked this earth together. And yet, I cannot stop thinking, wondering...
Was there jubilation and happy tears at the birth? Was this young family full of hopes and dreams at that very moment? Was the death of mother and child imminent or unexpected? How did he, the husband, the father, bear the loss of his twenty-five year old bride and their baby? How did he live out his life?
Thank you, Mary.
I imagine other women kneeling beside you on a crisp autumn morning, shedding a tear for you, thanking you for the blessed renewal of clinging to...living in...cherishing of...this very moment of life.
This very moment is the perfect teacher, and, lucky for us, it's with us wherever we are.
~~Pema Chodron
~~May your this very moment always be cherished. Promise yourself that it will be. And I would love to hear that you do promise...simply say, I promise.